Advocacy

The American Society of Human Genetics (ASHG) today published a new Guidance on the challenges in the development and application of polygenic scores (PGS) in human genetic research. Appearing in today’s issue of the American Journal of Human Genetics (AJHG), this new resource was developed by a writing group led by members of the ASHG... Read More

The 10th anniversary of the Rally for Medical Research took place on September 14, 2022. ASHG is proud to have again sponsored this event on Capitol Hill, which brought together 250 participants from more than 30 states and Washington, D.C. to meet with 190 congressional offices. Science advocates were enthusiastic to return to the capital... Read More

The American Society of Human Genetics (ASHG) today published a new Guidance on community engagement as a strategy to address underrepresentation in genomics research. Appearing in today’s issue of the American Journal of Human Genetics (AJHG), this new resource was developed by the Society’s Community Engagement Guidance Writing Group, comprised of members of the ASHG... Read More

Long-standing ethical principles for genetics research help respect and protect research participants, and they are especially important for preventing harm to marginalized or vulnerable populations. Recent reports allege that several genetic studies conducted in China may not have secured individuals’ consent for their participation freely and without coercion. These reports reinforce the need for ASHG... Read More

The Access to Genetic Counselor Services Act was introduced in the U.S. House of Representatives (H.R. 2144) and the U.S. Senate (S. 1450) to recognize certified genetic counselors as healthcare providers and authorize the Centers for Medicare and Medicaid Services (CMS) to reimburse genetic counselors directly for the genetic counseling services they provide to Medicare... Read More