Dr. Genevieve Wojcik will discuss the role of social determinants of health in genetic epidemiology, specifically the need for careful consideration from study design to interpretation. She will present two vignettes to illustrate: (1) a study of enteric infections in Bangladeshi infants, which required homogeneity of SDOH to better isolate genetic effects, and (2) the... Read More
Many polygenic risk scores (PRS) have been published with an eye towards clinical implementation. However, little work has been done on the social and ethical considerations of calculating and returning PRS, particularly across genetic ancestral backgrounds. This session reports findings from embedded ELSI studies examining social and ethical considerations of returning clinical PRS across diverse... Read More
ASHG’s published Guidance, “Addressing Underrepresentation in Genomics Research through Community Engagement” lays out recommendations to help scientists understand and responsibly engage underrepresented communities in research studies. The speakers will discuss these recommendations, the evidence and rationale that supports them, and provide practical tips for researchers who want to establish collaborative research partnerships with communities. This... Read More
This is a test LMS product. Read More
This is a test LMS product. Read More
This webinar series will describe responsible and meaningful community engagement approaches across the research lifecycle, in a manner that addresses health inequalities, avoids potential harms, builds trustworthy relationships, and increases the representation of underrepresented communities in genetics and genomics research. Learning Objectives To identify potential challenges and opportunities of community engagement practices. To learn,... Read More
This series of three educational webinars will highlight scientific and ethical, legal and social implications (ELSI) perspectives on why the appropriate and responsible use of population descriptors matters in genomics research. Panelists will provide their unique perspectives and guide group discussion using case studies as examples. **Please read through the reading materials in advance of this... Read More
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