Advocacy

Contributed by TDC member Julie Jurgens May 2017 ASHG: What are some of the genetic policy items that ASHG is currently discussing? Dr. Scholes: The Preserving Employee Wellness Programs Act (HR1313) is currently a major focus. This legislation, recently introduced in the U.S. Congress, would eviscerate key genetic privacy protections in the Genetic Information Nondiscrimination Act (GINA). GINA prevents employers... Read More

Posted by: Derek Scholes, PhD, ASHG Director of Science Policy As you may have heard, a bill called the Preserving Employee Wellness Programs Act (H.R.1313) was introduced last month in the U.S. House of Representatives. If passed, this bill would fundamentally undermine the privacy protections of the Genetic Information Nondiscrimination Act (GINA), a 2008 law... Read More

Posted by: Nancy Cox, PhD, ASHG President, and Joe McInerney, MS, ASHG Executive Vice President We’re happy to share that ASHG has signed on as an official partner to the March for Science, taking place April 22, 2017, in Washington, DC and at 425+ sister marches around the world. As genetics specialists and enthusiasts, we... Read More

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Thursday, March 9, 2017 12:00 pm U.S. Eastern Time BETHESDA, MD – The American Society of Human Genetics (ASHG) applauds yesterday’s passage of S-201, the Genetic Non-Discrimination Act, in a 222-60 vote by the Parliament of Canada’s House of Commons. Because of minor... Read More

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Wednesday, March 8, 2017 8:30 am U.S. Eastern Time Bill Would Undermine Genetic Privacy Protections BETHESDA, MD – The American Society of Human Genetics (ASHG) opposes H.R.1313, the Preserving Employee Wellness Programs Act, introduced on March 2 and scheduled for markup by the... Read More