Advocacy

The Access to Genetic Counselor Services Act was introduced in the U.S. House of Representatives (H.R. 2144) and the U.S. Senate (S. 1450) to recognize certified genetic counselors as healthcare providers and authorize the Centers for Medicare and Medicaid Services (CMS) to reimburse genetic counselors directly for the genetic counseling services they provide to Medicare... Read More

Scientists are in the unique position to directly convey the benefits of human genetics and genomics research to policymakers. It is critical that we communicate the benefits of human genetics and genomics research to Congress because decisions happen on the Hill that affect research and the use of genetics-based technologies – with or without our... Read More

Published: Wednesday, May 11, 2022, 4:00 PM U.S. Eastern Time Media Contact: Kara Flynn, 202.257.8424, press@ashg.org ROCKVILLE, MD – Today, the American Society of Human Genetics (ASHG) hosted its 2022 Capitol Hill Day bringing together 21 researchers, clinicians and other advocates from across the country to meet with key members of Congress and their staff to discuss shared... Read More

On April 4, 2022, the National Academies of Sciences, Engineering, and Medicine (NASEM)’s Committee on Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research (“the Committee”) held a virtual public workshop as part of its work to prepare a report on this topic, which will be published in early 2023. ASHG President... Read More

Since the pandemic began, participating in policy and advocacy as scientists has become incredibly challenging.  Interacting with both federal and local representatives has become particularly difficult, as scientists can no longer go to D.C. or to their state legislatures and meet with representatives in person.  This is frustrating, because communicating the importance of scientific research... Read More