Genetic Discrimination

Last month, Canada’s Supreme Court issued a key decision on the Genetic Non-Discrimination Act (GNDA), a law passed by the Canadian Parliament in 2017 and supported by ASHG.  GNDA protects individuals from being required to undergo genetic testing or share their genetic information, such as with insurance companies and employers. We sat down with Barbara... Read More

Published: Thursday, January 3, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org Protections Remain Vital to Research Progress and Given Growing Use of Genetics ROCKVILLE, Md. – The American Society of Human Genetics (ASHG) articulated its support for comprehensive protections against genetic discrimination worldwide, citing the need for fairness, access to... Read More

Protections against genetic discrimination advance genetics research and the clinical use of genetics, as well as ensure the ethical use of genetic data. Ten years after the passage of the Genetic Information Nondiscrimination Act (GINA), ASHG remains a staunch advocate for GINA’s strong implementation and for other laws that enhance protections for the public. Related:... Read More

Written by Nascent Transcript writer Allison McCague August 2018 May 21 of this year marked the tenth anniversary of the Genetic Information Nondiscrimination Act (GINA), a landmark piece of legislation that Senator Ted Kennedy—one of the sponsors of the bill—called “the first civil rights bill of the new century of the life sciences.” GINA’s passage was the... Read More