Realizing the benefits of human genetics and genomics research for people everywhere.
ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More
Published: January 29, 2020, 9:00 a.m. U.S. Eastern Time Media Contact: Kara Flynn or Nalini Padmanabhan, 301.634.7346, press@ashg.org Respondents Want Confidence in Data Privacy, Have Some Knowledge Gaps ROCKVILLE, Md. – As genetics and genomics knowledge expands rapidly throughout research, medicine, and society, Americans are excited and optimistic about this area of research and its emerging health... Read More
ASHG/NHGRI fellows Eve Granatosky and Sammy Katta recap a well-attended ASHG 2019 session at the intersection of science, policy, and bioethics. Read More
ASHG's latest Perspective articulates core privacy principles the Society believes should apply to all human genetics and genomics research. Read More
The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More