Statement

In 2016, the Parliament of Canada debated bill S-201, the Genetic Non-Discrimination Act, which would ensure that all Canadians can benefit from genetics-based clinical advances without fear of genetic discrimination. ASHG has long supported the establishment of strong protections against genetic discrimination worldwide, and as such, advocated in favor of S-201. The bill was signed... Read More

ASHG supports state licensure of certified genetic counselors to help ensure that the public has access to genetic and genomic services provided by qualified health professionals. The rapidly expanding use of genomics in healthcare decisions will increase the need for qualified genetics professionals, and genetic counselors play an important role in treating patients and families.... Read More

In 2015, ASHG issued a position statement on ethical, legal, and psychosocial implications of genetic testing in children and adolescents. Published in The American Journal of Human Genetics, the statement aims to guide approaches to genetic testing for children in the research and clinical contexts. Related: Infographics: Pediatric Genetic Testing (March 2016) Points to Consider:... Read More

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Thursday, July 2, 2015 12:00 pm U.S. Eastern Time (UTC-05:00) Statement Addresses Scientific Advances, Ethical Questions, and Implementation BETHESDA, MD – The American Society of Human Genetics (ASHG) Workgroup on Pediatric Genetic and Genomic Testing has issued a position statement on Points to... Read More

Following rapid innovation in non-invasive prenatal testing (NIPT), ASHG and the European Society of Human Genetics published a joint statement in the European Journal of Human Genetics that addressed the responsible use of these tests across conditions and how they might fit with existing approaches. Related: Statement: Non-invasive Prenatal Testing for Aneuploidy and Beyond: Challenges... Read More