The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source.
Related:
- AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019)
- Press Release: ASHG Asserts Core Genetic Data Privacy Principles for All Research and Funding Arenas (September 2019)